Cohort Data Availability
The below table shows which cohort data is currently available via the Data Portal. For cohorts stating ‘please enquire’, contact Emma Squires, Data Project Manager, at emma@chi.swan.ac.uk to find out the latest news for cohorts you are interested in.
All cohorts can be applied for using our online application form, and the comments on access permutations are relevant once we receive your DPUK study application.
| Full Name | Acronym | Country | Data Availability | Data Access Comments |
|---|---|---|---|---|
|
Aberdeen Cohort of the 1950's |
ACONF | UK | Available now | A direct application to ACONF will also be required |
|
Airwave Health Monitoring Study |
Airwave | UK | Available now | Direct access via Portal. Genomics data now available |
|
Avon Longitudinal Study of Parents and Children (Parents) |
ALSPAC (Parents) | UK | Available now | Direct access via Portal |
|
Avon Longitudinal Study of Parents and Children (Children) |
ALSPAC (Children) | UK | Available now | Direct access via Portal |
|
Amyloid Imaging for Phenotyping Lewy body dementia |
AMPLE | UK | Available now | Direct access via Portal |
|
Biomagnetic biomarkers for dementia |
BioFind | UK | Available now | Direct access via Portal |
|
Brains for Dementia Research |
BDR | UK | Available now | Direct access via Portal |
|
Oxford Brain Health Clinic |
BHC | UK | Available soon | Data is expected to become available during the summer of 2023 |
|
BRACE Memory Clinic |
BRACE | UK | Available now | Direct access via Portal |
|
Cambridge Centre for Ageing and Neuroscience |
Cam-CAN | UK | Available now | A direct application to Cam-CAN will also be required |
|
Cambridgeshire Parkinson's Incidence from GP to Neurologist |
CamPaIGN | UK | Available now | Direct access via Portal |
|
Caerphilly Prospective Study |
CaPS | UK | Available now | Direct access via Portal |
|
Cognitive Function in Ageing Study |
CFAS | UK | Available now | Direct access via Portal |
|
Cognitive Function in Ageing Study II |
CFASII | UK | Available now | Direct access via Portal |
|
Cognitive Function in Ageing Study Wales |
CFAS Wales | UK | Available now | Direct access via Portal |
|
The Cognitive Health in Ageing Register: Investigational, Observational, and Trial Studies in dementia research: Prospective Readiness Cohort Study |
CHARIOT Pro Main Study, CHARIOT Pro Sub Study | UK | Please enquire | This data is likely to become available towards the end of 2023 |
|
COgnitive behavioural therapy vs. standardised medical care for adults with Dissociative non-Epileptic Seizures: a multicentre randomised controlled trial |
CODES | UK | Available now | Direct access via Portal |
|
Delirium and Population Health Informatics Cohort |
DELPHIC | UK | Available now | Direct access via Portal |
|
Deep and Frequent Phenotyping Pilot Study |
DFP Pilot | UK | Please enquire | This data will become available in early Summer 2023 |
|
The Dominantly Inherited Alzheimer Network |
DIAN | UK | Please enquire | DPUK will help facilitate a direct application to DIAN |
|
DPUK Synthetic Dataset |
DPUK Synth | UK | Available now | Direct access via Portal |
|
English Longitudinal Study of Ageing |
ELSA | UK | Available now | Direct access via Portal. ELSA Genomics data now available |
|
European Prospective Investigation of Cancer |
EPIC Norfolk | UK | Available now | Variable selection required |
|
Environmental Pollution Induced Neurological Effect Cohort |
EPINEF | South Korea | Available now | Direct access via Portal |
|
The Exeter 10,000 Project |
EXTEND | UK | Available now | Direct access via Portal |
|
Generation Scotland |
Generation Scotland | UK | Available now | Direct access via Portal. Imaging data availability can be discussed with the cohort |
|
The GENetic Frontotemporal dementia Initiative |
GENFI | UK/US | Please enquire | Data Owners will provide a data subset as per the needs of your study |
|
Genetic and Environmental Risk in Alzheimer's Disease |
GERAD | UK | Available now | Direct access via Portal |
|
MRC AD Genetics GSA Cohort |
GSA | UK | Available now | Direct access via Portal |
|
HealthWise Wales |
HWW | UK | Please enquire | DPUK will facilitate a direct application to HWW |
|
Incidence of Cognitive Impairment in Cohorts with Longitudinal Evaluation–PD |
ICICLE-PD | UK | Available now | Direct access via Portal |
|
Imperial Amyloid PET cohort |
Imperial APC | UK | Available now | Direct access via Portal |
|
Lothian Birth Cohort 1936 |
LBC1936 | UK | Please enquire | DPUK will facilitate a direct application to LBC 1936 |
|
Memento |
Memento | France | Available now | Data Owners will provide a data subset as per the needs of your study |
|
Million Women Study |
Million Women | UK | Please enquire | DPUK will facilitate a direct application to Million Women |
|
MRC Genetic Resource for LOAD |
MRC_LOAD | UK | Available now | Direct access via Portal |
|
MRC National Survey of Health and Development |
MRC NSHD | UK | Available now | Data Owners will provide a data subset as per the needs of your study |
|
Northern Ireland Cohort of Longitudinal Ageing |
NICOLA | UK | Available now | Variable selection required from a subset |
|
Neuroimaging of Inflammation in MemoRy and Other Disorders (the NIMROD study) |
NIMROD | UK | Available now | Direct access via Portal |
|
Oxford Parkinson's Disease Centre Discovery Cohort |
OPDC Discovery | UK | Available now | Temporarily Unavailable for application. Please enquire for further information |
|
Viking Genes: A cohort of volunteers with Scottish Isles ancestry for identifying rare genetic variants influencing complex diseases (formerly Orkney Complex Disease Study) |
ORCADES | UK | Available soon | Data is expected to become available at the beginning of 2023 |
|
Parkinsonism: Incidence and CofNitive heterogeneity in CambridgeShire |
PICNICS | UK | Available now | Direct access via Portal |
|
The PREVENT Research Programme |
PREVENT | UK | Please enquire | DPUK will facilitate a direct application to PREVENT |
|
étude Prospective sur l'Infarctus du MyocardE |
PRIME | UK | Please enquire | DPUK will facilitate a direct application to PRIME |
|
Platform for Research Online To investigate gEnetics and CogniTion and ageing |
PROTECT | UK | Available now | DPUK will facilitate a direct application to PROTECT |
|
Quantitative MRI in the NHS – Memory Clinics |
QMIN MC | UK | Available now | Direct access via Portal |
|
Samsung Medical Center Amyloid PET Cohort |
SMC Amyloid PET | South Korea | Please enquire | Direct access via Portal |
|
TRACK HD |
TRACK HD | UK | Phenotypic data available now. Imaging and Genetics coming soon | Direct access via Portal for phenotypic. Imaging and Genetics data to become available by Summer 2023 |
|
UK Biobank |
UK Biobank | UK | Please enquire | DPUK will facilitate a direct application to UK Biobank |
|
Viking Genes: A cohort of volunteers with Scottish Isles ancestry for identifying rare genetic variants influencing complex diseases |
Viking Health Study Shetland | UK | Available soon | Data is expected to become available at the beginning of 2023 |
|
Viking Genes: A cohort of volunteers with Scottish Isles ancestry for identifying rare genetic variants influencing complex diseases |
Viking II | UK | Available soon | Data is expected to become available at the beginning of 2023 |
|
Whitehall II |
Whitehall II | UK | Available now | Variable selection required from a DPUK subset, and signature of a Whitehall access agreement required |
|
Whitehall II MRI Substudy |
Whitehall II MRI | UK | Available now | Variable selection required from a subset |