Cohort Descriptives

Variable Response
Cohort Name Viking Genes: VIKING II Study
Cohort Acronym VIKING II
Study Overview The purpose of VIKING II is to create an observational cohort of volunteers with ancestry from the Northern and Western Isles of Scotland, primarily for identifying genetic variants influencing disease.
#Subjects at Baseline 5366 participants had completed the online study questionnaire by 21/10/2022
Institution Name The University of Edinburgh
Department Name MRC Human Genetics Unit / Usher Institute
City Edinburgh
Study/Database Website

Principal Investigator (PI) Prof James F. Wilson
Key Study References


Population Based Study? Yes
Family Based Study? Yes
Clinical based sample? No
Is there follow-up data available? Summary data from the EHR will be available in future; consent is also given for recontact
Were participants included prior to development of dementia (may refer to controls only)? All participants were free of dementia (to the extent of being able to complete an online questionnaire) at recruitment
Were participants included prior to development of MCI (may refer to controls only)? As above, mild cognitive impairment is possible, but unlikely given the complexity of the online recruitment process
How is data collected? Online and from the EHR (routine NHS data on participants living in Scotland); also genetic data from saliva samples
Who carries out data collection? The participants complete a detailed online questionnaire
Does this take place in participants' homes or at a central location? In participants' homes
Do participants take part individually or are families/partners involved? Individuals, their families and partners are all welcome to join the cohort if eligible
Dementia cases ascertained as part of study: Zero
How many times followed up? Zero
Study start date 14/01/2020 00:00:00
Study end date 18/02/2023 00:00:00
Is study ongoing? Yes
Is study still recruiting? Yes
Inclusion criteria Participant is aged 16 years or above, willing and able to give informed consent for participation and has at least two Shetlandic, Orcadian or Hebridean grandparents
Exclusion criteria Lack of capacity to provide informed consent, or the lack of Northern Isles or Hebridean ancestry, or no access to the internet